Having a child with Down syndrome is a ticket into one of the most incredible and supportive communities. It's unbelievable how that extra chromosome is able to connect families around the globe.
I have nothing especially poignant to write about. Like many others, I've struggled some days more than others. I tried to remind myself in the hard moments how lucky I am. I have family near by who is able to help us out a tremendous amount. My husband and I are both working. My kids [...]
As my oldest son is about to embark on his journey as a first grader, I've been thinking about the first 6 years of his life, and reflecting on what's it been like to raise a child with down syndrome. Robert, 8 months old When Robert was born, we didn't know he had Down syndrome. [...]
Do you find that you're feeling more guilty about things as this pandemic goes on? Or are you letting things go more often? Someone recently told me that I was such a calm mom, and my immediate response "WHAT!?" - ok not really, but I was surprised to hear that! I told her I think [...]
Full time?Part time?In Class?Online?Indoors? Outdoors? What will school look like for Robert in the fall? And what about the little kids? Daycare? Home care? "Work From Home and Try to Care"? What will happen? What to do? How to decide when the information is ever changing, and emotions oscillate from laissez-faire to une grande peur? [...]